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EndPreeclampsia Web Team
May 13, 2023
In Basics
Our Senior Moderator, Sara Owens, writes: High-risk does not always mean you have or will develop complications. It does mean that your provider feels you have a higher likelihood of developing a complication then other patients. But even if you are high-risk, you may have a very uncomplicated pregnancy. It just means that your provider is aware of higher potential for complications and should provide appropriate monitoring in case complications do arise. Medically complicated means that you or baby or both have known underlying conditions or problems that may mean some changes to your care. Your doctor may recommend running extra tests for either or both of you, seeing a higher level provider, and/or delivering by a certain point or in a certain way. Should I be considered high-risk after preeclampsia? If my doctor says I am high-risk, does that mean they expect me to have complications again? Yes, if you have had preeclampsia or another hypertensive disorder of pregnancy, you should be considered high-risk in all subsequent pregnancies. Again, you may have a completely uncomplicated pregnancy, and in fact, most women who have had preeclampsia do have uncomplicated pregnancies the next time. If your doctor says you are high-risk, it does not always mean they expect you will have complications, but it should mean they will be prepared in case anything changes. What does a high-risk pregnancy look like? This is going to be very individual. Your provider can review your obstetric history, fetal outcomes, underlying conditions, and so on and give a personalized monitoring and assessment plan for you. They can also decide if they want to refer you to a higher level of provider or hospital, and they can create a plan for delivery. High-risk has a very wide range. For women who deliver at term, where baby and mom recovered quickly, no underlying conditions, high-risk may just mean their regular OBs do the recommended baseline testing and are just aware of their history and ready to act if anything changes. Except for baseline testing and perhaps home BP monitoring, their subsequent pregnancies may not look especially different from a low risk pregnancy. For women who delivered preterm, who lost a baby, and/or who have certain underlying conditions, their subsequent pregnancies may be a little more busy. It is common for those women to have extra visits, sometimes with Maternal Fetal Medicine specialists or other specialists like cardiology. They may also have more ultrasounds, more NSTs, more lab work. This chart is from the US's ACOG. It talks about the recommended monitoring and testing for women with a history of preeclampsia. There is leeway for individual situation, especially in the third trimester. Your plan will look specific to you! Here is our list of preconception questions to ask as well. My doctor said I am not high-risk and they will just proceed "as normal" unless anything changes. This may be a matter of wording choice. As discussed above, you should be considered high-risk, but if your circumstances do not warrant extra tests and such, your pregnancy may not look very different from low risk. Use the above chart to discuss with your doctor how they will ensure that you and baby receive appropriate monitoring and any necessary care. My doctor says I only need some baseline labs and a couple of ultrasounds. I see other women going to MFM, going for NSTs, and so on. Is my doctor doing enough to make sure baby and I are safe? Or My doctor wants me to come in twice a week for two months, wants me to see MFM, etc. That seems like a lot – do I really need all of that? Again, this is going to depend on your situation. Ask your doctor what they feel is appropriate for your clinical situation, as outlined in the chart. Ask your doctor what their concerns are for you and this baby and this pregnancy. Ask them what impact the results of certain tests would or would not have on your care and delivery plan. Informed consent means that you should be able to understand your doctor’s reasoning, and they should be able to understand your concerns, and in the end, you should both be comfortable with the plan and approach. Here are some posts that can help you have a productive conversation with your doctor about how your care should look: This post is about concerns when your doctor doesn't listen. This post is about what good care looks like in the context of preeclampsia. This post has suggestions to help you advocate for yourself. This post explains how to keep mothers safe. This post goes over what is the role of the MFM. I just discussed the plan with my doctor, and that made the fear a little too real, and now I am worried and scared. Hugs – pregnancy after preeclampsia is stressful, for sure. Many of us can relate to how you are feeling, and we are always here to listen and to lend a virtual shoulder. But we also recommend keeping your doctor informed about how you are feeling, emotionally as well as physically. They can help, by discussing pregnancy-safe anxiety meds and when those might be warranted. They can also refer you to a mental health professional who can help you develop some coping techniques for anxious moments. Postpartum.net also has some excellent resources. Specific information for those living in the UK In the UK, as you don't have direct access to either an OB or MFM, your pregnancy will usually be placed on the appropriate pathway when you book in with the community midwife. They will complete a risk assessment and score you on risk, which will include details of past pregnancies, losses and personal data. Your NHS trust will have a specific pathway detailing what your care looks like if you are high-risk, so make sure to ask your midwife. They will provide you with a list of appointments and with whom when booking in. If needed, you will be referred to MFM departments at a larger hospital if your pregnancy becomes medically complicated.
What do "high-risk" and "medically complicated" mean for pregnancy? content media
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EndPreeclampsia Web Team
Feb 25, 2023
In Pregnancy
Our Senior Moderator, Sara Owens, writes: Pregnancy causes a natural increase in insulin resistance. For some women, this goes a bit further than it should, and your body needs some assistance to keep your blood sugars down to a safe range. When this happens after about 20 weeks of pregnancy, it is considered gestational diabetes, caused by the placenta, which is why most women do a glucose tolerance test, where you drink a set amount of a sugary solution and then have your blood checked, in the 24-28 week range. If you were diabetic, or borderline diabetic, before pregnancy, or if you have had GD in a previous pregnancy, your doctor may start you on a diabetic diet right away and/or may do glucose testing early to check for undiagnosed pregestational diabetes. If you've had diabetes of any type in pregnancy, feel free to share about your experience and management in this thread!
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EndPreeclampsia Web Team
Feb 25, 2023
In Pregnancy
What are the different types of urine protein testing, and what do they mean? Dip Test -- a strip is dipped into a single sample, and the color is compared to a chart; can be done in office Spot Test -- the amount of protein in a single sample is measured in a lab 24 Hour Urine -- you collect all urine for 24 hours, and the lab measures the amount of protein in the full amount of urine Protein Creatinine Ratio (PCR) -- the lab measures the amount of protein in a single urine sample, like with the spot test, but also measures the amount of creatinine in a single urine sample and compares them together to approximate the 24 hour urine. You can read more about lab work associated with preeclampsia in this post.
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EndPreeclampsia Web Team
Feb 25, 2023
In Babies
For many of us, a preeclampsia diagnosis means an early or rushed delivery that places our baby in the NICU, sometimes for days, weeks or even months. If you are being discharged from the hospital before your baby is ready to leave, this post will contain some suggestions to hopefully help you prepare for this moment, and cope with what’s to come. Dealing with your emotions upon discharge I’m not gonna lie - it’s going to be very hard to leave without your baby. It’s okay to acknowledge your feelings! It’s okay to feel hurt and scared about the coming days. Here are some things that may help: Ask the NICU staff if you can leave something with your scent on baby’s isolette or crib, and if you can bring back home something with baby’s scent with you. Talk to a therapist to help you navigate this transition into the NICU life. If therapy isn’t an option for you, you can consult some options over at postpartum.net. Talk to your loved ones about your fears, and reach out to other parents who’ve gone through similar (including the ones in this group!). You’ll find that you’re not alone in your thoughts. Remember, it’s okay not to be okay. Finding your footing I found the NICU life became easier as time went by. I was more tired, of course, but everything became more familiar to me and I wasn’t so scared of the machines and the beeps and the frenzy anymore. So I would suggest these things to make the NICU experience a little gentler for you: Look at your baby, not at the machines! The machines are kinda scary and they show numbers that keep changing. Sometimes they’ll drop and beep and go back to normal fast, but not fast enough to save you a heart attack. Focusing on baby’s state is a better option, because you’ll learn to notice how they’re actually doing, how their breathing is, their movements, etc. If you feel that something’s wrong, flag the staff and they’ll come right away. They’ll be able to address the problem or reassure you. Journal! Keeping a journal of baby’s NICU stay can help you unload difficult information and also help process your feelings about what is going on. Some people like to keep track of weight records, medications, exams, and so on, while others may want to focus on milestones and fun things. You may want to write everything down! Explore until you find what works for you. Keeping a page on social media is also an option if you want to keep others updated on baby’s progress - it’s also a great way to save time and energy when you can’t talk about it a lot. Ask questions! The NICU staff is usually very friendly and they’ll be happy to explain what the exams and pokes mean. If you’re not sure about something, ask! Take pictures! It is amazing to see our babies grow. How often should I visit my baby? Truly, there’s no right answer for this. It depends on what works for you and your family, your NICU’s rules and hospital configuration, visiting hours, whether your baby has a private or shared room, and so on. Some women are able to go every day for many hours, while some others are only able to visit for a couple hours a day. There are some that may only be able to visit during weekends. Sometimes, visits are suspended if there is a procedure being done on another baby (this happened to me many times.) So, things can happen - there is no single right way. Your baby will benefit from your presence, so try to be there when you can. If you feel like you need a break, it is alright to take a day off! Baby needs you to be strong and rested, so prioritize your mental and physical health, too. You and baby will build a long-term bond over time, and it will not be negatively affected by this NICU stay. Are you facing this situation now? Have you faced it in the past and have some wisdom to share? Let us know in the comments! And remember, this whole community is rooting for you and your baby.
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EndPreeclampsia Web Team
Feb 25, 2023
In Basics
Our Senior Moderator, Sara Owens, writes: We often have parents asking this question. It is a bit more complicated than just your BP, and there is not one set number, as every situation is a bit different. We can tell you the general guidelines, though. If you have just two readings over 140/90, either number, that can count as a gestational hypertension diagnosis. If your numbers are over 140/90 but under 160/110, and everything else is good with you and baby, they recommend 37 weeks for delivery (it may vary a bit by country). If you have those two high readings over 140/90, but not at 160/110, plus one other diagnostic criterion, usually protein over a certain point, that can count as a preeclampsia diagnosis, and if all else is well with you and baby, 37 weeks is recommended again by all major world health advisory groups. If you have chronic hypertension, meaning your BP was elevated before pregnancy or in the first 20 weeks, they may not be as concerned about 140/90 and may wait until 38 weeks or longer to deliver, if you and baby are otherwise stable. If you develop severe features of preeclampsia, such as BP over 160/110, then 34 weeks may be recommended. Other severe features such as elevated liver enzymes, signs of kidney struggle, and evidence of brain swelling such as severe and unresponsive headache, often mean delivery earlier than 37 or even 34 weeks (often within hours to a couple of days at most). HELLP Syndrome, with or without high blood presure, usually means delivery within hours to a couple of days at most. With severe features or HELLP, they may delay delivery for a short time in order for steroids for baby's lungs to take effect, if they feel that is safe in that specific situation, while watching closely in case anything changes to necessitate an expedited delivery. Eclampsia (seizures) usually means delivery very quickly once you are stable. If baby is showing signs of struggle due to an insufficient placenta, such as low fluid, poor growth, or poor blood flow through the cord, then they may decide to deliver earlier than 37 or 34 weeks. It is all a balancing act. They don't want you to get too sick, and there can be a point at which baby is not doing well on the inside either, but if both of you are doing okay, they will plan for 37 weeks. If one of you starts to show signs of bigger issues, then they will deliver sooner. You can have BPs just over 140/90 and be stable enough to wait for 37 weeks, or you can have BPs just over 140/90 and be very sick and in need of early delivery if you have something else turning severe like liver enzymes. It is a bit complicated, so someone else's BPs won't really tell you much. What you can do is talk to your doctor about your numbers and ask what their concerns are. You can ask how they will be monitoring for signs of severe features too. Once you have a gestational hypertension or preeclampsia without severe features diagnosis, they typically keep a very close eye on you and baby with blood work and ultrasounds frequently so you can ask about that sort of thing. I hope this helps explain all of what your doctors are considering when they decide that you are safe to remain pregnant longer or that it is time for delivery. They are doing their best to find the right balance in order to keep two patients safe.
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EndPreeclampsia Web Team
Feb 25, 2023
In Babies
Many of us have had, or may have, steroid shots to prepare for baby's early arrival. We're gonna tackle some common questions about steroids here! Read more in this ACOG post. What was your experience with antenatal steroid shots? Share below to help more mamas!
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EndPreeclampsia Web Team
Feb 25, 2023
In Basics
Why doesn't/didn't my doctor listen to me? Why doesn't/didn't my doctor do something? Our Admin, Jennifer Hohulin Heiniger, writes: There are bad doctors out there who do not manage cases well. Even a really good doctor may miss something once in a while, especially for unusual presentations. Having said that, I very often see cases where doctors are doing everything right, but patients simply do not realize what good care is supposed to look like. One of the tricky things about preeclampsia is that many of the symptoms could be preeclampsia but could also be other things, including normal pregnancy symptoms. Doctors need to evaluate to see if something is related or not. If you have concerning symptoms, your doctor evaluates you, and decides it is not related to preeclampsia, that does not necessarily mean they are ignoring you or missing something. There is no treatment for preeclampsia except delivery and time. They do not want to deliver prematurely unless it is clearly needed. There are guidelines in place to help doctors decide when you need to deliver and when you can safely wait. If your doctor has evaluated your symptoms and decided to send you home, that does not necessarily mean they are ignoring you or missing something. It just means you are not bad enough to deliver right now. I know it is scary to feel like you are just waiting for something to go wrong, not knowing when it might happen, and being helpless to do anything to stop it. We want our doctors to do something, but the only thing they can do is evaluate and then either deliver or wait. I know it is frustrating to go to the hospital and be sent home over and over, especially when you feel terrible. But that is the only way to know if new or worsening symptoms mean it is time to deliver or if you can safely stay pregnant. This post explains more about what good care looks like. And if you have concerns about your care, this post has some talking points and questions that can help you communicate with your doctor.
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EndPreeclampsia Web Team
Feb 25, 2023
In Basics
We often get questions about lab results for blood or urine. We are not doctors. Even if we were, we are not your doctor. We do not have all your information and history in front of us. We cannot interpret your labs. We can give you some general information about lab work related to preeclampsia. I will outline some common issues in this post. This could help you better understand your results. But of course, your doctor will need to interpret them and explain what they mean in your particular case. There are other lab results that may be abnormal with preeclampsia or HELLP. They are not specific, though, and are not used in diagnosis. They are a general sign that your body is dealing with something. Check with your doctor to see what they mean and if they are concerning.
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EndPreeclampsia Web Team
Feb 25, 2023
In Pregnancy
I've been diagnosed with preeclampsia. Do I need to be admitted to the hospital for the rest of my pregnancy? Can I be monitored from home? Our Admin, Jennifer Hohulin Heiniger, writes: There are a lot of factors that go into the decision of whether to admit someone to the hospital. Doctors look at things like how far along you are, how any previous pregnancies went, how your current pregnancy is going, even how far away you live. Preeclampsia is hard to predict. Sometimes it moves quickly and sometimes slowly. The average time from diagnosis to delivery is around two weeks, but that includes a wide range from those who deliver immediately to those who stay stable for weeks or even months. When severe symptoms start to appear, it can get very bad very quickly. Some of our members have been admitted for the duration of their pregnancies for hospital bed rest. If your doctor recommends it in your case, they should be able to explain why. You can ask what they are watching for that will tell them it is time to deliver. You can ask what tests they will be doing each day, how often you will see them for rounds, etc. You can also ask about hospital resources for long-term patients. They may have a therapist on staff you can talk to, for example. Being in the hospital can be scary and boring. It is natural to feel anxious or depressed. You can also discuss medication options. They may also have activities you can do. You can ask if you are stable enough to walk around or go outside for a short time each day. You can ask about visitor policies, which can change depending on the situation in your community. Can your partner or another support person stay with you all the time? Can you have more than one or two visitors at a time? If you have other children at home, can they visit? You can also work with your nurses to make your stay as good as possible. My night nurses would come in immediately at shift change to do my hour of fetal monitoring. Then I could have a solid 6 hours of sleep before the lab tech came in for my morning blood draw. It helped a lot not to be woken for monitoring at 3am. If you have nurses you like, or nurses you do not like, you can ask to have them put onto or off of your scheduled care. Other members have been able to stay at home after diagnosis with frequent appointments. Your doctor can explain how often you will have appointments and what tests they recommend at each one. They should also give you instructions on symptoms to watch for between appointments and what to do if you notice something. If anything starts to change, do not be afraid to call or go in for evaluation. See some questions and talking points to communicate with your care team here.
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EndPreeclampsia Web Team
Feb 25, 2023
In Postpartum
Our Senior Moderator, Sara Owens, writes: A lot of us find that we end up with large bills after our preeclampsia experience, and/or we or our partners are unable to work for a while while we or baby are in the hospital. This group does not allow requests for assistance because so many of us have been through financial troubles, but we have put together this list of suggestions that may help with costs. Talk to your insurance company to make sure they have covered everything they are supposed to cover. Apply for Medicaid, for you and/or baby. They can cover retroactively. A baby in NICU may qualify for disability coverage while in the hospital and after coming home. Tell the hospital/NICU social worker if you are struggling; they can sometimes provide help like food, gas, and parking vouchers, and they can give you information about social security and other organizations who may be able to help. Talk to the hospital and clinic about payment plans, or about reducing the bills if you pay a certain amount right away. Ask the hospital what sorts of benevolence fund they can offer. I googled "help with bills [My Hospital Name]" and a form came up where you can apply for hardship assistance. I also found a phone number for their financial counseling department. Yours may have those as well, so dig around and see what you can find -- and ask, even if you do not think you will qualify! If you are struggling to pay regular bills due to you/your partner not working as much, talk to your creditors and see if they can give you a month or two off. Let them know the situation and see if you qualify for any sort of benevolence or income-based help. If you have a church or other similar group, ask if they can help with some groceries or with paying a utility bill. Ask friends or family if they are willing to help a bit now and then, and if people ask how they can help, let them know what would be most helpful. Apply for food stamps, WIC, energy assistance, etc., even if you are not sure you qualify. For prescriptions, look into Goodrx, and shop around; some pharmacies will have lower prices. WalMart may have a $4 cost for your prescription. Ask if there is a generic alternative or a similar medication that may be cheaper. Ordering online and/or ordering a 90-day supply (once your meds are stable) may get you a better price. Ask if your doctor has samples, and look at the manufacturer's website to see if they offer any assistance with the cost. If transportation is difficult, contact your insurance and see if they offer any form of non-emergent transportation to medical appointments and the like. Look into the types of work leave allowed for you and your partner, what portion of your salary/ies may be covered, and what leaves must be used before others are available. Stacking the different leaves may allow for better coverage of expenses while you and/or baby are incurring lengthy hospital stays, but it may take longer than your regular pay interval to receive the money. You should talk to your HR department or the equivalent about what is available to you and what documentation they would need, and the hospital social worker may also be able to tell you what your area provides. You may qualify for a combination of sick leave, vacation leave, specific paid maternity leave, family medical leave (not required to pay but can hold your job for several weeks), state medical leave, short term disability, and/or long term disability. You may need to sign up for disability before becoming pregnant, so that is something to keep in mind when planning a pregnancy. Some areas may offer COVID-related benefits, so ask your HR or equivalent about those, or ask the social worker if such things are available. If you have additional suggestions for helping with the bills and other costs, feel free to leave them in the comments, and we will edit the thread as warranted.
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EndPreeclampsia Web Team
Feb 25, 2023
In Pregnancy
How early can preeclampsia start? I have/had certain symptoms early on. Are/were they signs? Our Admin, Jennifer Hohulin Heiniger, writes: Preeclampsia as we currently understand it is caused by chemical-proteins released by the placenta. There is a shift in the way the placenta functions that happens around 20 weeks. Before that shift happens, preeclampsia as we understand it cannot happen. Caveats: Just like some people walk earlier or later than average, or go through puberty earlier or later than average, some placentas will make the shift earlier than average. But we are talking about days to a week early, not months. Also, sometimes dates may be off. Women diagnosed in week 19 are counted as close enough. HELLP syndrome is a related condition that follows a different pathway of development. It can occur as early as 16 weeks. Some doctors use the term "preeclampsia" as a general catch-all word for any related condition, and some diagnose preeclampsia along with HELLP even when it is not there on the assumption that you *would* develop PE if you stayed pregnant long enough. So we do sometimes see cases of "preeclampsia" in the 16-20 week range that are really HELLP syndrome. I went through the research literature and pulled out all the case studies of women developing preeclampsia before 19 weeks. After eliminating those who actually had HELLP, there were 15 cases total. Eight had fetuses with severe genetic abnormalities incompatible with life. Four had severe autoimmune disorders; these were way worse than the run-of-the-mill lupus, etc, we see commonly around here. Three had no known explanation. All were confirmed with kidney biopsy. All resulted in fetal demise. The sample size is so small, we simply do not have enough data to understand why these cases happened. If one of these women (or one of the early HELLP survivors) is reading this, I am so sorry. When we reassure women that preeclampsia hardly ever happens this early, we are not trying to diminish your experience. What you went through was horrible. I wish we had more answers for you. And someday case number 16 will happen, so while no one should be overly anxious, it is good to be aware. One of the tricky things about preeclampsia is that many of the symptoms could be preeclampsia but could also be a number of other things. We see women in early pregnancy who have high blood pressure (from unmasked chronic hypertension), and protein in their urine (from preexisting kidney damage), and headaches (from shifting hormones), and swelling (which is common in pregnancy), and upper right quadrant pain (from gallbladder), and, and, and, and it looks like preeclampsia but it's not actually preeclampsia. It is a coincidental cluster of symptoms. It is important to make this distinction, because women with a coincidental cluster of symptoms can go on to have long pregnancies with happy endings. Women with true early-onset preeclampsia do not. Having said that, some of those conditions raise the risk for developing preeclampsia later on, so it is important to keep monitoring closely, but it is probably not preeclampsia that early.
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EndPreeclampsia Web Team
Jan 04, 2023
In Babies
If your baby has been taken into the NICU for breathing issues, this post contains a short primer on the different kinds of breathing support offered to babies. First, hugs - we understand how concerning it is to hear your baby is struggling to breathe. Your baby's team will be doing their best to get them back into shape as soon as possible. Basics about oxygenation The air around us in the world contains 21% oxygen. This is the minimum amount that all of us need to keep our blood oxygen levels in a good range. When babies are struggling to keep their blood oxygen levels in a good range, doctors can help them by upping the percentage of oxygen into the air that they breathe. Your doctor can adjust the percentage of oxygen from 21% (called “room air”) all the way up to 100%. Your doctor can also help baby by adding pressure into the air, so it is easier to inflate the lungs. This is sometimes needed because lungs are not meant to deflate all the way; when this happens, they “collapse” and it’s hard to open them up again. This happens sometimes with younger babies, or even with older gestation babies when they don’t produce enough of a substance called “surfactant”. The surfactant coats the lungs and prevents them from collapsing. Types of breathing support The ventilator or "vent": Ventilators offer the highest kind of support. They are offered to babies who can't breathe on their own, usually because their brains are still immature or because they are otherwise too weak to sustain their own breathing. A baby who needs a vent will be “intubated”, which means they will get a tube placed into their windpipe. This tube will allow them to get air (usually mixed with oxygen) into and out of the lungs in a controlled manner. There are various types of vents, including the conventional ventilator, the jet, the oscillator, and NAVA. They differ in how they assist ventilation (for example, some give them frequent, smaller breaths, and some others give them fewer, bigger breaths), and sometimes each method will mean they will change how you will be able to interact with your baby. Some methods mean you will not be able to pick up or hold your baby for a while. Remember to ask your nurse what kind of vent they are in, and how it works. Positive airway pressure (CPAP and BiPAP): This kind of support is used in babies who are able to sustain their own breathing, but who may need help with maintaining their lungs inflated. The little masks blow air into the lungs at a certain pressure; the CPAP machine maintains a constant pressure all the time, while BiPAP has two different pressures, one for breathing in and one for breathing out. Nasal cannula (high flow or low flow): Nasal cannulas offer the lowest kind of respiratory support. When babies don't need additional pressure but still can benefit from a bit of help to maintain their blood oxygen levels, they will use these cannulas that deliver oxygen. In some cases, babies who are on low flow oxygen can be discharged home with it (in which case you'll have oxygen tanks at home until baby outgrows the need for additional support). Some questions Is it possible to skip some kinds of respiratory support? Yes, not all babies will need all of these, and if a baby is doing well, they may be able to move through them quickly or skip some altogether. Your baby's doctor will try to wean them considering their oxygen levels and their overall state. I got steroids before my baby was born. Will they help? Yes, steroids can help baby avoid the need for respiratory support. But even with steroids, some babies can need a little help at first. It depends on many factors like gestational age at birth, size, mode of delivery, other underlying conditions, etc. Babies who are near or at term and who don't have other health conditions will usually spring back very soon. My baby was doing so well, but now they’ve had to take a step back. Why, what is going on? Hugs, we’re so sorry. Remember that breathing is hard work for our littles! Sometimes they just need to rest a little after working so hard, and this step back will allow them to rest and recharge. It doesn’t mean that baby won’t be able to keep progressing. If you feel like the numbers and settings in the machines are causing you stress, it’s okay to not watch them and to concentrate on your baby. Take your cues from the nurses and doctors - they see the big picture and know what back and forth is normal vs. when it is time to be concerned, and they will let you know. I see they’re giving my baby support, but their oxygen saturation is not at 100%. Why aren’t they helping them more? Good question! The NICU staff will want to aim for numbers closer to 95% rather than 100% if your baby was premature, as this can prevent a complication called retinopathy of prematurity (ROP), an eye condition. Questions to ask your NICU staff What kind of breathing support does my baby need? Do you expect my baby to need this kind of support for a long time? What should I expect? Can I hold my baby? What kind of interaction is okay?
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EndPreeclampsia Web Team
Jan 04, 2023
In Babies
Our Senior Moderator, Anna Hollywood, writes: The below are my tips and tricks for pumping when baby is either in the NICU or at home. These are not a definitive list, but they have got me through the last 3/4 years now of breastfeeding and pumping for my children. The big thing to have in your mind once your milk supply has come in is that milk supply is about milk removal: the more you empty your breast, the more it signals your breasts to make more. So here are some tips: You need to express between 8-10 times in 24 hours in order to bring your milk in fully, this mimics roughly what a newborn baby does. I would always suggest hand expressing first, so you do not loose all that amazing colostrum in the pump parts and you can syringe it off your nipples, I would hand express until you are getting at least 5ml of colostrum from each breast then move onto the stimulation part of a pump programme. Once your milk starts to come in then move onto the full programme and remember to pump for every feed baby has. One of those sessions needs to be between 1 and 4am, as this is when your milk producing hormones are at their highest. Try and double pump on a hospital grade pump if this is available to you. Pump for at least 20 minutes and then hand express after you finish. Breast milk is like a river; it maybe slow moving in places, but it is continuous. Have a look at hand expressing - this is a really useful skill to have and can get you out of all sorts of tricky situations. I have hand expressed on aeroplane when my pump battery died. I work from the top of my breast down to the nipple with firm strokes. You will learn where the milk ducts are and you will then be able to bring the milk down. You can also do breast compressions. Using you hand in a C-shape, gently massage the top of the breast in a pinching movement. This stimulates the milk. Try and get as much skin on skin as you possibly can with your beautiful baby. If you are in the NICU, do it as frequently as you can manage. If you are at home, have some lovely baths with your baby, anything to get that skin on skin and smell those lovely baby smells. Some say it can help to cover the milk bottles that you pump into, as it takes the pressure away from seeing how much is going into the bottle - it will stop you watching the milk dripping. Stay hydrated and look after yourself! That includes your body and your mind. If you need a break from pumping, then have it - do not beat yourself up if you need a rest. You have been through a lot. Look into power pumping - I have tried to do this once per day usually at my early morning pump, as this is when your hormones are at their highest. To power pump, you would pump for 20 mins, rest for 10 mins, pump for ten mins, rest for 10 mins and then finish off with 10 min pump. In my hay day I was pumping about 15oz at this time of night. If you can cut up an old bra so you can be hands free while pumping even better as this will help with the breast compressions. Other tips such as looking at baby photos or baby videos can also assist with those milk production hormones. Vitamins, supplements or things like oatmeal cookies do not always help with milk production; in some cases, they can even reduce milk supply. Always speak to a lactation consultant or a doctor before trying anything! Your breastfeeding journey can be whatever you want it to be, it can be a combo of breast and expressed milk along with adding formula when you need to if you need to and if you choose to. Feeding your baby does not define you as a mum; please look after you too.
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EndPreeclampsia Web Team
Jan 04, 2023
In Basics
Our Senior Moderator, Sara Owens, writes: I have read that preeclampsia rates are on the rise. What does this mean, and how does it affect me? Yes, preeclampsia rates are rising, but it is important to consider the reasons behind any headlines and why they may not be all bad. These are some reasons behind the increase (there may be others as well). One, COVID has increased preeclampsia rates in the last couple of years. We know that contracting covid while pregnant does carry a higher risk of preeclampsia. (Scientists are still determining if this is because covid messes with the placenta and causes the poor implantation that leads to preeclampsia or if it causes a preeclampsia-like illness.) What you can do: Get your covid vaccine, and wear a mask and social distance in areas with high spread. Two, more women with risk factors for preeclampsia are having babies than ever before. Underlying conditions such as chronic hypertension and diabetes are on the rise in the general population, and those are risk factors for preeclampsia. Being over 40 is a risk factor, and more women over 40 are having babies. Assisted reproduction is a wonderful gift to many families who would otherwise be unable to have children, but it is also a risk factor for preeclampsia, both because it may affect how the placenta develops and because of the reason for needing assisted reproduction in the first place, such as a metabolic disorder. Assisted reproduction also increases the risk of multiples, as does being of advanced maternal age, and multiples are a risk factor for preeclampsia too. What you can do: Get some underlying conditions (like chronic hypertension and diabetes) under control, and ask if you should take low dose aspirin. Three, we have a better understanding of preeclampsia now too. It has only been since 2013 that the US removed proteinuria as the requirement for a diagnosis, and we still see doctors who insist that the patient cannot have preeclampsia because she does not have significant proteinuria. Now, we know that preeclampsia may affect liver, lungs, and brain, and that a mother can have preeclampsia, specifically with severe features, even if she has no proteinuria. So this greater understanding of the disease has led to more women being recognized as having preeclampsia. Ultimately, this particular aspect is a really good thing, because it means that we are catching more women who really need magnesium so they don't have seizures or die. What you can do: Know your call in and go in numbers and symptoms, and get checked out if there is a concern.
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EndPreeclampsia Web Team
Jan 04, 2023
In Prevention
Our Admin, Jennifer Hohulin Heiniger, writes: We received a news report from a member about probiotics in pregnancy causing an increased risk of preeclampsia. Thank you for bringing this to our attention, Leah. We will not share the news report, because as happens entirely too often, the reporter does not fully understand the research, and the information is presented in a way to draw maximum attention. I looked up the study in question (source). It was primarily focused on preventing gestational diabetes, not preeclampsia, but included data on other outcomes. It was a small study, around 400 participants identified as overweight or obese. Half were assigned to take probiotics while the other half received a placebo. When you have a small sample size like this, it is possible that more patients who were going to have a better outcome anyway would end up in the treatment group just by luck. This can make it look like the treatment had a good effect when maybe it did not. The opposite is also true--more patients who were already going to have a good outcome could end up in the placebo group by chance, making it look like the treatment was actually harmful when it was not. (But if the treatment group had worse outcomes, it is likely the treatment in question does not help, even if it does not hurt.) This is why studies are repeated over and over with more and more participants. The larger the sample size, the harder it is for this to happen by chance, and the more likely the results are to be accurate. This is also why so many treatments that seemed to show promise in early, small studies are later found not to help after all. It is true that this study found more cases of preeclampsia (almost double) among those taking probiotics compared with those taking placebos. Does this mean probiotics cause preeclampsia, or make it worse? Not necessarily. Again, this was a small study, and it is entirely possible that it was just bad luck that more participants who were going to get preeclampsia anyway ended up in the treatment group. I noticed that statistically, the placebo group had a lower rate of preeclampsia than we would expect, which would point to the "bad luck" explanation rather than probiotics being harmful. We would not conclude that placebo pills prevent preeclampsia, after all. But it is also pretty clear from the results that probiotics did not prevent preeclampsia or gestational diabetes. So, what does this mean for you, our members? First of all, if you took probiotics and also got preeclampsia, I want to assure you that this was not your fault. You did not cause complications by taking probiotics. For those of you currently pregnant or considering a pregnancy, it should be fine to eat yogurt, drink kefir, and other probiotic-containing foods if you enjoy them. Please check with your doctor before taking additional high-dose supplements of probiotics, just like you would any other supplement. And if you see people proclaiming all the amazing health benefits of high-dose probiotics? Take it with a grain of salt. The research so far does not support those claims.
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EndPreeclampsia Web Team
Jan 04, 2023
In Prevention
Our Admin, Jennifer Hohulin Heiniger, writes: Recent research published in the BMJ explores using Metformin to prolong a pregnancy after diagnosed with preterm preeclampsia (source). Here is what you need to know: History There has been interest in Metformin as a possible treatment for preeclampsia for a while. A few years ago, scientists noticed it promoted the growth of placental tissue in petri dishes, but were not sure how to apply this to human patients. Other studies have looked at patients taking Metformin for other reasons like PCOS or T2D. They still got preeclampsia at similar rates. From this, it does not appear to be a prevention, but more studies are needed. This is one of the first studies to see if it prolongs pregnancy, even if it does not prevent preeclampsia entirely. Results This was a randomized, double-blind study, the “Gold Standard” of research. Patients who were diagnosed with preterm preeclampsia were assigned to either the Metformin group or the Placebo group. Researchers looked at how long they stayed pregnant after diagnosis while taking these treatments. The Metformin group stayed pregnant an average of 7 days longer than the placebo group. This is very promising! A Word of Caution This was an early study, with only 180 participants, 90 of which took Metformin and 90 controls. When you have a small sample size like this, it is possible that more patients who were going to have a better outcome anyway would end up in the treatment group just by luck. This can make it look like the treatment had a good effect when maybe it did not. The larger the sample size, the harder it is for this to happen, and the more likely the results are to be accurate. Studies like this need to be repeated with larger groups, and then done again with even larger groups, before we can make firm conclusions. It has often happened in the past that something looked promising in early trials, only to fall apart in bigger studies. We are optimistic about Metformin, and look forward to seeing more studies over the next few years. But we cannot say yet that it definitely helps prolong preeclamptic pregnancies. Should I ask my doctor for Metformin? You can certainly ask, but do not be surprised if they do not prescribe it, unless you have the opportunity to join a clinical trial. Doctors have learned their lesson the hard way about jumping into new treatments before the full research process has been completed. In the past, it was common to start prescribing treatments based on preliminary research, only to find out it did not help. This would mean exposing patients to risks with no benefits. Doctors who got used to prescribing something to all their high-risk or complicated patients had to re-learn not to use it anymore. But Metformin is already used in pregnancy, so it couldn’t hurt, even if it doesn’t help, right? Again, we cannot say this for sure until more studies are done. Just a few years ago, a medication was being used in clinical trials for preeclampsia (not Metformin). It had passed the first few rounds of study and was thought to be safe. But then, three separate projects in different countries had multiple fetal and newborn deaths. All studies on this medication were immediately stopped and the research reviewed to see what went wrong. Was the medication actually unsafe, was it just bad luck, was there another factor involved? These studies have still not been restarted. This is why it is really important to wait, even though I know it is frustrating when you are dealing with complications now, and need help and hope now. Yes, scientists want to help those who can be helped, but not causing harm is a greater concern. Have a question not covered here? Ask in the comments! Link to the published study here.
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EndPreeclampsia Web Team
Jan 04, 2023
In Prevention
Our Admin, Jennifer Hohulin Heiniger, writes: If obesity is a risk factor for preeclampsia, does that mean losing weight can help prevent it? First of all, obesity is a risk factor for preeclampsia, but that does not necessarily mean it is a cause. There are some underlying conditions that can make it difficult to lose weight and also are risk factors for preeclampsia. It may not be the weight itself that is the problem, but the underlying thyroid disorder, insulin resistance, PCOS, etc. Second, weight is just one factor in a long list of risk factors. Preeclampsia can happen to thin women, too. When we divide women based on weight (underweight, normal weight, overweight, obese) and see who gets preeclampsia, there are cases in all four groups. There will be slightly more in the overweight and obese groups compared to the normal and underweight groups, which is why it is counted as a risk factor. But preeclampsia can happen to women of any weight if they have other risk factors in play. Now that we have that background, we can look at whether losing weight before pregnancy lowers risk. I pulled out four recent studies of decent quality on the topic. One, looking specifically at IVF, first eliminated women with PCOS. It found that losing weight between pregnancies showed a lower risk of gestational hypertension but not preeclampsia (source). The second study found that there was a small decrease in risk with losing weight, but the bigger finding was that gaining weight between pregnancies increased risk (source). The third is probably the best quality because it had over a million subjects. It found that losing weight did not decrease risk, but gaining weight increased risk (source). And the final one also found that losing weight did not decrease risk, but gaining weight increased risk (source). Now, I want to be clear. You DID NOT cause preeclampsia by gaining weight between pregnancies. As I outlined above, there are some underlying conditions that cause weight gain and also raise the risk of preeclampsia. Pregnancy can trigger or unmask conditions we did not realize we had before. It is not unusual for a woman to have new symptoms or get a new diagnosis during or soon after a pregnancy. We are not putting blame on anyone for gaining too much weight. Also, if you have gained weight and are considering another pregnancy, an increase in risk does not mean you are doomed. You could still have an uncomplicated pregnancy. We do encourage healthy lifestyle choices where possible. There are health benefits to losing weight, and your doctor may recommend it to help with certain other conditions. Maintaining a healthy weight to the best of your ability, eating plenty of vegetables and fruits, exercise, drinking water, etc, are all wonderful. Managing any health concerns like diabetes, thyroid imbalance, chronic hypertension, etc, is important. Being as healthy as possible may not prevent preeclampsia, but it can make recovery easier. This is not your fault.
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EndPreeclampsia Web Team
Jan 04, 2023
In Prevention
Our Admin, Jennifer Hohulin Heiniger, writes: Many times, we get questions from members who were under a lot of stress during their pregnancies. Stress and anxiety can cause a temporary increase in blood pressure, and preeclampsia also involves high blood pressure. They want to know if this stress could have caused preeclampsia. We know that preeclampsia is caused by the placenta. High blood pressure is a symptom. Even if stress causes a temporary increase in blood pressure, that is a different process from the placenta raising blood pressure. But could stress cause preeclampsia, or make it worse? Research There are studies on this topic, but I have yet to see one that I would consider to be of high quality. It is very hard to study the effects of stress on pregnancy. It would be unethical to lock women in a lab for a year from preconception through post partum, intentionally inflict stress on half of them while pampering the others, and compare the results. Instead, researchers try to find other ways to measure stress. They usually do this in one of two ways, either with retrospective surveys or through arbitrary definitions. There are drawbacks to both of these approaches. Retrospective surveys A retrospective survey means researchers ask their subjects after the fact to look back on their pregnancies and rate their stress levels. The drawback is that our memories are not always accurate. Someone might have a relatively easy pregnancy, only to end with a traumatic complication. From then on, their pregnancy will be colored by that trauma. They might remember their pregnancy to be more stressful than it actually was. The opposite can also be true. Someone might have a rough pregnancy, but once baby is safely in their arms, they only remember the happy parts. Their pregnancy is colored by their good ending. When surveys find that subjects with complicated pregnancies report more stress than those with uncomplicated pregnancies, is it because they actually had more stress, or because their trauma has clouded their memories? Arbitrary definitions This second method involves scientists giving a score to different careers and life events. They give the subjects a stress evaluation based on this scoring system. But it does not take into account that different people might experience different levels of stress in the same situation. For example, I am naturally gifted at public speaking. Give me a topic, a timeframe, and a deadline, and I can lecture in front of 200 people without notes, no problem. But many people would find that same situation incredibly stressful. Can we really say that Doctor is always more stressful than Lawyer, is always more stressful than Teacher, is always more stressful than Fast Food Worker, etc? Or here is another example. When my father's father died, it was a shock to the whole family. No one was expecting it. It was a very stressful time, and we all grieved deeply. When my mother's father died, it was a relief. He had been sick for years, was confined to his bed, and did not recognize us. We still grieved, yes, but not in the same way. If Researchers arbitrarily gave "Death of a Parent" a score of, say, 8/10, my father would say it was more like a 10, and my mother would say it was more like a 4. What do we know? We know that preeclampsia happens at similar rates around the world, with all different circumstances and cultures. This includes refugee camps. Now, we may not all agree on how stressful public speaking is. We may not all experience the same level of stress with losing a parent. But I think we can all agree that the life of a refugee is stressful. Dodging bombs and gunfire, watching loved ones die, not knowing where your next meal will come from. No matter who you are or how easy-going your personality, that would be stressful. Yet we do not see higher rates of preeclampsia among refugees. I want to be clear that stress, grief, and trauma are not competitions. The stress in your life is legitimate and important. "Not as bad as a refugee" does NOT mean your problems are not still stressful. But if the stress of fleeing war does not increase the risk of preeclampsia, the loss of a pet, an overbearing boss, or an unsupportive partner probably will not do so, either. Final thoughts I do not want any of you to feel guilty that you may have caused preeclampsia by being stressed, or worry that you will cause it. Preeclampsia is not your fault. I also do not want you to suffer under a stressful situation. Mental health care is so important. If you find yourself in a difficult situation, there is often help available. There may be local services that can help--support groups, help paying bills, etc. We encourage all of you to talk with their doctors about how you are doing emotionally. Therapy and medication can make a big difference as you process your stressful circumstances. Learning techniques for calming stress can be so helpful. You are not alone.
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EndPreeclampsia Web Team
Jan 04, 2023
In Prevention
Our Admin, Jennifer Hohulin Heiniger, writes: I have a history of preeclampsia. If I have another child with the same partner, does that affect my risk? Or, I have a new partner. If I have a child with him, how does that affect my risk? It depends. We know preeclampsia is multi-causal, so there is no one answer that fits all cases. Here are several scenarios: Most women only get preeclampsia once and go on to have normal pregnancies. For the more common mild-at-term cases, one theory is that the mother's body just does not "know" how to do pregnancy first time around, but figures it out for the next one. This would hold true with either the same or a different partner. *IF* this is the reason you got preeclampsia, you are likely to be fine no matter the father. Another possibility is that the mother's immune system overreacts to the foreign DNA from the father the first time, which prevents the placenta from implanting properly and leads to preeclampsia. Second time she has become familiar with his DNA and accepts it more easily. A new partner introduces new, unfamiliar DNA, which can trigger an immune response just like the first pregnancy with the previous partner. *IF* this is the reason you got preeclampsia, changing partners would raise your risk while staying with the previous partner would lower it. Yet another possibility is the Dangerous Partner theory. The placenta is half mother and half father. Your genes work together to build it. It is thought some men code for aggressive placentas, which would result in preeclampsia and other complications no matter who the mother is. Some couples have genes that do not work well together in placenta building. They might have preeclampsia together every time, but would each do better with a different, more genetically compatible partner. *IF* this is the reason you got preeclampsia, a new partner could actually lower your risk while staying with the same one would raise it. And some women would have preeclampsia no matter who the father is, because they have some other underlying condition or trigger going on. *IF* this is the reason you got preeclampsia, your risk is the same regardless. It is difficult, often impossible, to figure out exactly which scenarios apply to which couples. If you have had preeclampsia once, you should be considered high risk and monitored closely in a future pregnancy, no matter who the father is. Being high risk does not mean you will definitely get it again, only that they will watch you closely just in case. Close monitoring will make sure you and baby have the best chance possible.
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EndPreeclampsia Web Team
Jan 04, 2023
Preeclampsia risk factors, explained content media
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